Siblings of unwell children at Queen Elizabeth Hospital will benefit from Snettisham family’s donation

Charlie Lavvaf, front, presents games consoles to the Queen Elizabeth Hospital's Rudham Ward, along

Charlie Lavvaf, front, presents games consoles to the Queen Elizabeth Hospital's Rudham Ward, along with his mother Alison Hipkin, third from left back; father Pete Laavaf, middle back, and sister Evie. They are pictured with hospital staff members and fundraising helpers. Picture: Victoria - Credit: Archant

Charlie Lavvaf, 8, often joins his father Pete Lavvaf and mother Alison Hipkin during their regular trips to the Queen Elizabeth Hospital (QEH), King's Lynn, with his younger sister Evie.

Alison Hipkin with Evie and her partner Pete Lavvaf with Queen Elizabeth Hospital neonatal nurse Jul

Alison Hipkin with Evie and her partner Pete Lavvaf with Queen Elizabeth Hospital neonatal nurse Julie Oughton. Picture: Victoria Fear - Credit: Archant

The three-year-old, who lives with her family in Snettisham, has a life-limiting disorder called Rhizomelic Chondrodyslasia Punctata (RCDP) which causes respiratory infections and an inability to grow.

She spends a lot of time on the Rudham Ward due to respiratory infections and Charlie has accompanied his parents.

This inspired his parent's to raise money to buy games consoles and equipment for other siblings to play with.

Ms Hipkin said: 'When Evie is ill our first thought is to pack her bag and get here quickly so unfortunately sometimes we do forget to bring something for Charlie.

Evie Lavvaf at her home in Snettisham with her big bother Charlie, 8. Picture: Ian Burt

Evie Lavvaf at her home in Snettisham with her big bother Charlie, 8. Picture: Ian Burt - Credit: Ian Burt

'We feel for the siblings who come into hospital with their brothers and sisters so we thought it would be nice to have something here for them and that is why we wanted to buy the consoles. Charlie is the driving force behind this idea.'

Earlier this year Mr Lavvaf raised £6,300 for Genetics Disorder UK by climbing to Everest base camp.

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MORE - Little Evie's family reach for new heights to thank charity for supportHe raised an additional £2,000, with help from Heacham Minors FC, which has been divided between Rudham Ward, the QEH's Neonatal Intensive Care Unit (NICU) and East Anglian Children's Hospice.

Evie Lavvaf at her home in Snettisham. Picture: Ian Burt

Evie Lavvaf at her home in Snettisham. Picture: Ian Burt - Credit: Ian Burt

The family, along with Nigel Jeavons of Hughes Electrical, Hunstanton, and the football club's Andrew Dix and Ian Guymer, visited the ward to present the games consoles along with £500 to the NICU.

'The aim of the Everest trip was to raise awareness of RCPD along with money,' said Mr Lavvaf. 'That donation will be helping children in the future but we also wanted to do something now to help other local good causes.

'Throughout our fundraising we have received so much support from both Nigel at Hughes, who kindly donated an Xbox One and an Ipad, as well as everyone at Heacham Minors FC and we can't thank everyone who has supported us enough.'

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