Mothers aim to set up charity in tribute to tragic one-year-old Jesse Langford-Daley, who died of rare brain tumour
PUBLISHED: 16:17 23 June 2017 | UPDATED: 16:17 23 June 2017
Only a month ago, one-year-old Jesse Langford-Daley drove down the aisle in a personalised car at his mothers' wedding as the ring bearer.
But now, after the inspirational youngster’s tragic death from a rare brain tumour, his parents aim to set up a charity in his memory to help families battling the odds against cancer.
Jesse, from Watton, was diagnosed with the devastating illness earlier this year.
His parents Anneka and Michelle Langford-Daley - who gave birth to him through IVF - had taken him to a doctor with what they thought were symptoms of a respiratory infection in February.
Their lives were turned upside down when Jesse was diagnosed with a rare atypical teratoid rhabdoid tumour, an aggressive form of cancer of the central nervous system.
In the four months since his diagnosis, Jesse had only spent 10 days at home due to his medical treatment.
His parents were told he only had a 0.5pc chance of survival.
However he found the energy and strength to attend his parents’ wedding in May, stealing the show as he drove down the aisle. He died on Sunday, June 18 at his home surrounded by his family.
“He was a smiley and happy baby, always wanting to play even the day before he passed away,” Michelle Langford-Daley said.
And now the pair hope to set up a charity, Jesse’s Anchor, to help offer respite care to other families affected by cancer.
Anneka Langford-Daley said: “We never thought when Jesse was poorly that this would happen to him. The world believes this doesn’t happen to children because they haven’t had a chance to live. Growing up, he was well ahead of all of his milestones. He started walking when he was only eight months old.”
Jesse loved going to the aquarium and was never seen without his blue taggie blanket.
For his first birthday, his family surprised him with a fish tank filled with his favourite sea creatures and an anchor.
The anchor then came to symbolise Jesse’s strength - an anchor used to steady a ship in a storm, his mothers said. Anchors will serve as a theme for Jesse’s funeral on Thursday, June 29 at 1pm at Colney Woodland Burial Park. Anneka and Michelle Langford-Daley have invited members of the public.
To donate to the charity, visit their JustGiving page.