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Norfolk stroke survivors help increase access to NHS research

PUBLISHED: 14:10 16 October 2018 | UPDATED: 17:34 16 October 2018

An inquest has opened into the death of University of East Anglia student Jess Fairweather  PHOTO: Archant

An inquest has opened into the death of University of East Anglia student Jess Fairweather PHOTO: Archant

Archant

The NHS’ research arm, the National Institute for Health Research (NIHR) has teamed up with the University of East Anglia (UEA) to create a patient survey for people affected by a language impairment which can be caused by a stroke.

Aphasia is a language impairment affecting spoken language, reading and writing ability and understanding, which can often follow brain injuries such as a stroke.

Patient perspectives are key in helping the NHS improve how clinical research is carried but limits to language can sometimes create obstacles for people trying to access feedback forms and convey their experiences.

Now, the NIHR and the UEA’s Aphasia’s Research Arm have launched a patient survey which is available in paper and digital formats to make it more accessible and easier for people with aphasia to use.

It is hoped the new platform will encourage the development of further projects to improve communication and engagement in clinical research, to access the survey visit: bit.ly/aphasiaPRES and for more information about how patients and the public can get involved in NIHR research visit www.nihr.ac.uk/nihr-in-your-area/eastern/patients-and-public.htm

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