A Disney-themed holiday would make two-year-old Winter smile
- Credit: Eastern Daily Press © 2016
A mother wants fulfil her youngest daughter's wish for a Disney-themed holiday before she has to undergo a serious operation.
The Goodwin siblings have been burdened with more than their small shoulders should ever have to bear.
Of the four children, all under the age of 10, three have the same debilitating immune disorder which means they have not been able to enjoy the same freedoms as other children.
The fourth has already acted as a bone marrow donor for one sibling and will be doing the same for another in the future.
Now, the Thetford family face a new challenge – Winter, aged two, has seen her health deteriorate, with doctors saying she too will need to have a bone transplant.
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And mum Danielle Smith would love to make her youngest daughter's dream of a Disney-themed holiday come true.
Winter, her sister Honey, seven, and brother Alex, eight, all suffer from chronic granulomatous disease (CGD), a disorder which means their immune system cannot fight off bacterial and fungal infections.
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It means they have to avoid a number of everyday objects including straw, mushrooms and cut grass.
Honey underwent a bone marrow transplant over a year ago with a donation from four-year-old brother Hunter, the only one of the siblings not to suffer from CGD.
The EDP previously reported on Honey's year-long battle with the illness, her speedy recovery and her return to school in Thetford.
Her remarkably quick recovery was hailed by her doctors as the fastest they had seen and she is now used as a positive case study for other families.
During a routine visit to Great Ormond Street in February, the children's parents, Danielle Smith and Gary Goodwin, were told Winter's condition was worsening and she would need a transplant as soon as possible. A provisional date has been set for September.
However, as Hunter is due to give a donation to Alex in the future, Winter will be getting a donation from a stranger.
Ms Smith said: 'Her health has deteriorated and they wanted her done before Alex. It's not a sibling donor, it's someone we don't know, which means they could back out at any time.'
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