She suffers from a rare life-threatening condition and requires round the clock care to survive.
Twelve-year-old Matilda Moxon from Plumstead, near Holt, has Mitochondrial Cytopathy Complex one and four which means that her body does not have the energy required to develop properly.
She has relied on the services provided by East Anglia's Children's Hospices (EACH) at their Quidenham hospice since she was four.
Without them, her family - mum Bella, dad Matt and sister, 14 year-old Maisie - have admitted, they would struggle to cope.
Now golfers in Sheringham are launching a new fundraising drive to support families like them.
Bella Moxon, Matilda's mum, explained: 'When we drop her off for her stay we are confident that she will be well cared for and thoroughly enjoy her time there for her break.
'We have always felt so relaxed using the services EACH provides, even from our very first night when we all stayed together as a family, it felt very much like staying at someone's home. We were relaxed and confident that Matilda would be happy there right from the beginning.
'Matilda's stays at EACH are so important to us as they enables us to have time with Maisie where we can focus on her and also some time to ourselves.
'As a family we would find it very difficult providing the constant care Matilda needs without some sort of a break. Now she is older it becomes increasingly difficult to ask family members to help - EACH is a lifeline to us.
'We also have the added support of being able to talk to any of the staff at EACH if we need to.'
The charity, which provides care and support to life-threatened children and young people across East Anglia and supports their families, is currently fundraising for a new hospice to be built on a five-acre woodland site in Framingham Earl just south of Norwich.
The nook appeal is a £10 million campaign to transform children's palliative care across Norfolk. The current total secured for the appeal is more than £3.5 million.
Now Sheringham Golf Club has launched a Golf Unites drive to add to the fund.
It is offering to donate fees from its monthly medals competition to the charity and writing to all 75 club captains across Norfolk, Suffolk, Cambridgeshire and North Essex to join them.
In addition, Holt and District Rotary Club has also presented EACH with a cheque for £2370 following its tenth annual golf day at Sheringham.
Graham Butland, EACH Chief Executive, said: 'On behalf of everyone at EACH I would like to say a big thank you to Sheringham Golf Club for launching this initiative to back our nook appeal. We are so well supported by golf clubs across the region, I am confident that this campaign will only enhance this support further.
'In order to realise our vision to transform children's palliative care across Norfolk and reach out to more families we need a 21st century building for 21st century care.'
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