Glasses will give Harleston girl a new chance in life

Maisie Jones who live in Harleston with her family, has been diagnosed with Elhers Danios Syndrome,

Maisie Jones who live in Harleston with her family, has been diagnosed with Elhers Danios Syndrome, profound unilateral hearing loss and has learning and developmental disorders. Her family are raising money to buy special glasses which are not funded on the NHS. She is pictured with her mum Emma cooper and her brother Freddie Jones. Byline: Sonya Duncan Copyright: Archant 2017 - Credit: Sonya Duncan

Life can be a daily struggle for little Maisie Jones, who suffers from a rare condition that makes reading and looking at patterns difficult.

Maisie Jones who live in Harleston with her family, has been diagnosed with Elhers Danios Syndrome,

Maisie Jones who live in Harleston with her family, has been diagnosed with Elhers Danios Syndrome, profound unilateral hearing loss and has learning and developmental disorders. Her family are raising money to buy special glasses which are not funded on the NHS. She is pictured with her mum Emma cooper and her brother Freddie Jones. Byline: Sonya Duncan Copyright: Archant 2017 - Credit: Sonya Duncan

But now the six-year-old, from Harleston, has been given a chance to live a more 'normal' life thanks to generous donations.

After an online fundraising appeal, Maisie's family has raised more than £375, enough to cover the cost of potentially life-changing filters for a pair of specially-designed glasses.

Her mother, Emma Cooper, said: 'We'd like to thank everyone who donated for helping us raise the money for the Irlen lenses, and the tests that Maisie needed.

'We are still a little confused by everything because she has just recently been diagnosed and we still don't know an awful lot about the condition.'

Maisie Jones who live in Harleston with her family, has been diagnosed with Elhers Danios Syndrome,

Maisie Jones who live in Harleston with her family, has been diagnosed with Elhers Danios Syndrome, profound unilateral hearing loss and has learning and developmental disorders. Her family are raising money to buy special glasses which are not funded on the NHS. She is pictured with her mum Emma cooper and her brother Freddie Jones. Byline: Sonya Duncan Copyright: Archant 2017 - Credit: Sonya Duncan


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The condition is called Irlen Syndrome, which means she has visual distress problems and visual tracking issues. The new glasses will allow her to see through a colour overlay, which should allow her to read.

Miss Cooper said: 'When she's reading she finds it hard to stay on the line. It's difficult for her to see the black-and-white lines. But if she has a colour overlay, it helps her brain to see it better.

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'But they're not just for reading, she can wear them all the time.'

But Miss Cooper said it was not yet clear whether the frames could be bought through the NHS, or if her family would have to pay for them privately, in which case they might have to do some more fundraising.

Maisie Jones who live in Harleston with her family, has been diagnosed with Elhers Danios Syndrome,

Maisie Jones who live in Harleston with her family, has been diagnosed with Elhers Danios Syndrome, profound unilateral hearing loss and has learning and developmental disorders. Her family are raising money to buy special glasses which are not funded on the NHS. She is pictured with her mum Emma cooper and her brother Freddie Jones. Byline: Sonya Duncan Copyright: Archant 2017 - Credit: Sonya Duncan

In addition, she was born only able to hear in one ear and also has learning and developmental disorder.

Miss Cooper said Maisie, who is in Year 2 at Maisie at Harleston Primary School, often suffered from fatigue due to her conditions.

She said she hoped the new glasses would help boost her confidence.

Miss Cooper said: 'With all of her issues, she gets very tired throughout the day.

Maisie Jones who live in Harleston with her family, has been diagnosed with Elhers Danios Syndrome,

Maisie Jones who live in Harleston with her family, has been diagnosed with Elhers Danios Syndrome, profound unilateral hearing loss and has learning and developmental disorders. Her family are raising money to buy special glasses which are not funded on the NHS. She is pictured with her mum Emma cooper and her brother Freddie Jones. Byline: Sonya Duncan Copyright: Archant 2017 - Credit: Sonya Duncan

'The school have been brilliant and she gets one-to-one help, but she's very behind on her reading.

'But it can be hard to tell how she's coping because she's such a quiet little girl.

Maisie Jones who live in Harleston with her family, has been diagnosed with Elhers Danios Syndrome,

Maisie Jones who live in Harleston with her family, has been diagnosed with Elhers Danios Syndrome, profound unilateral hearing loss and has learning and developmental disorders. Her family are raising money to buy special glasses which are not funded on the NHS. She is pictured with her mum Emma cooper and her brother Freddie Jones. Byline: Sonya Duncan Copyright: Archant 2017 - Credit: Sonya Duncan

Maisie Jones who live in Harleston with her family, has been diagnosed with Elhers Danios Syndrome,

Maisie Jones who live in Harleston with her family, has been diagnosed with Elhers Danios Syndrome, profound unilateral hearing loss and has learning and developmental disorders. Her family are raising money to buy special glasses which are not funded on the NHS. She is pictured with her mum Emma cooper and her brother Freddie Jones. Byline: Sonya Duncan Copyright: Archant 2017 - Credit: Sonya Duncan

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