Father takes to Norwich streets to raise awareness of his little boy’s incurable condition
- Credit: Jason Slack
The father of a little boy who has an incurable and terminal condition took to the streets of Norwich to raise awareness of Duchenne Muscular Dystrophy.
Alexis Ellison travelled to the city from St Neots in Cambridgeshire to pound the pavements on Saturday, wearing his home-made sandwich board.
His son Samson was three when he was diagnosed with Duchenne Muscular Dystrophy in 2015. It is a condition which is caused by mutations in the genes responsible for the structure and functioning of muscles.
There is no cure and it usually affects boys in early childhood; men with the condition will usually only live into their 20s or 30s.
Mr Ellison, who was in Gentleman's Walk on Saturday, has been raising money and awareness of Action Duchenne, which funds research into the condition.
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Mr Ellison has already competed in the Tough Mudder endurance event and abseiled as part of his fundraising efforts.
Jason Slack, from Norwich, tweeted a picture of Mr Ellison wearing his Strong for Samson sandwich board and wrote: 'Can't but help admiring a dad who stood in the middle of Norwich yesterday for his son like this.'
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