Fantastic turnout hailed as charity walk raise vital funds and awareness

Fundraising walk by Stuart Everett's family and friends. Stuart with his wife, Lyndsay and children

Fundraising walk by Stuart Everett's family and friends. Stuart with his wife, Lyndsay and children Oliver and Charlie. PHOTO: Nick Butcher - Credit: Nick Butcher

To everyone who knows him, Stuart Everett is one in a million.

Fundraising walk by Stuart Everett's family and friends. PHOTO: Nick Butcher

Fundraising walk by Stuart Everett's family and friends. PHOTO: Nick Butcher - Credit: Nick Butcher

Having been diagnosed with a life-threatening disorder more than a decade ago, Mr Everett has suffered with a rare neurological condition for the past seven years.

But despite battling a debilitating illness, the brave 35-year-old of Oulton Broad has maintained a positive outlook and not let the condition 'define him'.

And at the weekend more than 120 people turned out to raise funds and awareness during a charity walk. The sponsored walk, from Lowestoft to Oulton Broad and back, attracted a 'fantastic turnout' as more than £3,000 was raised for the Myaware charity – which is fighting myasthenia gravis (MG), the condition Mr Everett suffers with.

He said: 'I was diagnosed with Guillain-Barre syndrome about 12 years ago after I woke up one morning and was paralysed from the neck down. I spent the next 12 months basically learning to walk again.'

Fundraising walk by Stuart Everett's family and friends. PHOTO: Nick Butcher

Fundraising walk by Stuart Everett's family and friends. PHOTO: Nick Butcher - Credit: Nick Butcher


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But after making a rapid recovery, his life was turned upside down again in 2009.

Mr Everett, who is managing director of Sentinel Leisure Trust – which runs leisure services in Waveney, said: 'I was struck down with MG, which is a very rare, debilitating condition.

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'Relapses can happen any day and basically there are one in a million people worldwide who suffer with both conditions.'

With it being the 40th anniversary of the Myaware charity, and myasthenia awareness month, Saturday's walk – organised by Mr Everett's wife Lindsay – was hailed a success.

Mr Everett said: 'There have been tough times, but my work have been brilliant in supporting me all the way and I have great friends and family behind me.

'A massive thank you from my wife Lindsay, twin boys Charlie and Oliver and I goes to everyone who took part, all the sponsors and those who donated – I am extremely flattered.'

Steve Ardley, mayor of Lowestoft, greeted the walkers on their return. He said: 'There was a fantastic turnout and hopefully this makes people more aware of the condition.'

Mr Everett's brother, Ian, added: 'Stu puts on a brave face and does not let MG define him – that is why we are here, to get together, raise awareness and funds for the charity.'

? Pledge support via www.justgiving.com/fundraising/Stuart-Everett1

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