Eboni, four, needs a heart transplant

Eboni Bunn looks like any other little girl. She loves to play with her dolls, enjoys school and likes nothing better than spending time in the garden and the sunshine.

Eboni Bunn looks like any other little girl. She loves to play with her dolls, enjoys school and likes nothing better than spending time in the garden and the sunshine.

Yet this remarkable little girl has been diagnosed with a rare condition which now means she is on a waiting list for a heart transplant at 24 hours' notice.

Eboni, from Heacham, first became unwell at Christmas, with what was thought to have been a chest infection.

But her cough failed to clear up, even after two doses of antibiotics.

Her mother, Lisa Belver-stone, 28, took her to the Queen Elizabeth Hospital and, after a series of tests, Eboni was diagnosed with hypertrophic cardiomyop-athy, which means her heart has enlarged and has to work twice as hard.

She had to be taken to Great Ormond Street Hospital in London as she was suffering from a major heart failure and she remained there for three weeks.

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Miss Belverstone, said: "It all happened so quickly. She had been taking antibiotics for a chest infection, then after tests we were told it was heart disease and that she needed a transplant.

"It was a shock. It's just something you don't expect especially when, before this, she had been so well."

She added: "She is currently on lots of medication, but there is no long-term solution for her unless she gets a new heart, and we are taking things a day at a time.

"She is just like any other four-year-old. She loves to run around, although she gets out of breath quicker, she loves pushing her dolls in the prams and she likes school. She is just a typical little girl."

She said the youngster, who has two brothers - Ryan, seven, and Luke, nine - has to have lines which are connected into her heart and chest, but she takes it in her stride and affectionately calls them her "wigglies".

Miss Belverstone, who plans to train as a nurse in September, said she had every faith in the doctors and medical team and would tell anyone else who may find themselves in this situation to stay strong and focused for the children.

She added: "If they see you positive, then they will fight too, and just keep smiling."

Eboni's father, Darren, 33, and uncle Jonathan, 30, will be taking part in two marathon bike rides to raise money for the British Heart Foundation.

Mr Bunn, an RAF engineer based in Lincolnshire, will be taking part in a 50-mile cycle ride in Norwich on June 4, and Jonathan, a HGV driver from Dersingham, will endure a 54-mile route from London to Brighton on Sunday, June 17.

Jonathan said: "We just wanted to do something to raise awareness and help other people like Eboni."

To sponsor the pair, contact Jonathan on 07841 489805.

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