December 13 2013 Latest news:
By Rosa McMahon
Wednesday, August 21, 2013
Hopes for Deryn Blackwell, the Watton teenager who is battling a rare form of cancer in Bristol, to return to his home town soon look unlikely.
Deryn, 13, has been a patient at the Bristol Royal Hospital for Children since February 14 when he travelled there for a bone marrow transplant.
The Wayland Academy student was diagnosed with leukaemia aged 10 before developing Langerhans Cell Sarcoma – one of only six cases in the world.
Doctors had hoped his treatment, which included total body radiotherapy and targeted radiotherapy to his throat before the operation and a long period of isolation after it, would tackle the caner.
As previously reported in the Times, doctors had said it looked as though Deryn was virus free and his bone marrow had grafted weeks after the procedure.
Family and friends had hoped Deryn would return to Norfolk this summer after making a good recovery after the operation.
But his mum has said despite Deryn’s hair growing back, his virus has returned and the only treatment is killing off the good-work the bone marrow has done.
“It feels like ground-hog day”, she said.
“Deryn says he just wants to go home now. We’ve been living in Bristol for six months and he’s bored.
“We all feel a bit fed up - every day is the same, we are just waiting for the next thing and waiting for results that we don’t even know are coming.”
The family, dad Simon, younger brother Dylan, and mum Callie, have travelled between the south west and Norfolk since February - with one parent staying in a house donated to the family for their time there by a local charity.
Now it is the summer holidays, the whole family is living in Bristol with plans to stay there for the next school term, with young Dylan being schooled in the hospital.
Deryn has lost more than 22lbs in the six months he has been in Bristol and his mum says she is trying every recipe she can to keep him well.
“We are doing everything in our power to make sure the cancer doesn’t come back”, she said.
Tweet Deryn at @_DoEveRYthiNg and follow his mum’s blog at www.doeverything.org.uk