Victory for Wymondham Motor Neurone Disease campaigner
A Wymondham campaigner for better support for people affected by Motor Neurone Disease has won a victory at County Hall.
Sue Heal said she was delighted Norfolk County Council’s Adult Social Care Committee has agreed to back the Motor Neurone Disease Charter, which raises awareness of the needs of people living with this terminal disease, their families and carers.
This week’s decision follows Mrs Heal enlisting the help of Wymondham mayor Joe Mooney last year to campaign to have the council support the charter.
Mrs Heal, whose husband, Jim, died of MND in 2012, said: “I am delighted with today’s result.
“I look forward to working in partnership with the Adult Social Care Committee and full council to raise awareness of MND and the needs of people living with the disease.”
Mr Mooney said: “I am very pleased that members of the Adult Social Care Committee voted in favour to support the excellent MND Charter.
“It will help raise awareness of the needs of local people living with this devastating disease and for that very reason I am very happy with the outcome of the meeting.”
The MND Charter is a statement of the respect, care and support that people living with MND and their carers deserve and should expect. Its five points are: The right to an early diagnosis and information, the right to access quality care and treatments, the right to be treated as individuals and with dignity and respect, the right to maximise their quality of life and that carers of people with MND have the right to be valued, respected, listened to and well-supported.
The charter will now go to a full council meeting in April for ratification.