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Norfolk MP tells health bosses they must find cash to fund vital mental health helpline

07:38 22 February 2016

Mind support line.  Ben Marshall, team leader. Picture: DENISE BRADLEY

Mind support line. Ben Marshall, team leader. Picture: DENISE BRADLEY

Copyright: Archant 2016

Mental health sufferers who use an at risk crisis support line are today hoping to have a breakthrough in their campaign to save the service, after a health minister and Norfolk MP waded into the row.

Concerns raised before helpline launched

Services for mental health patients suffering a crisis were described as “confusing and complicated” and “poor” during out-of-hours, in a report drawn up before Mind launched its helpline.

Health bosses say that from March 31, people who currently call on the Mind service will be able to rely on Norfolk and Suffolk Foundation Trust’s Crisis Resolution Home Team, which has a 24/7 helpline for existing patients.

However, we have obtained a report released in March 2015 by Healthwatch Norfolk, which slams the quality of crisis support. It is believed their findings were one of the reasons Mind were commissioned to set up the helpline.

The report says: “The crisis line is unsatisfactory, regarding how long it takes to get a response, the support that can be accessed and the manner in which service users are treated. The frequent complaint was that people going through a crisis were offered banal and patronising advice such as ‘make a cup of tea’ or ‘do some ironing’.

“One recurring complaint from service users was that they ring up the crisis line when they are feeling ill and often out of control, and they are told to distract themselves by having a cigarette, going for a walk, doing the ironing, doing the housework, walking the dog [the person didn’t have a dog], having a bath, having a cup of tea and so on.

“People felt that these comments were patronising and belittled their situation. There was a general level of unhappiness with the services people had received.”

It added that some comments suggest people had received responses which varied from the uncaring to the concerning.

One respondent said: “The crisis line is the biggest problem.

“When I rang, the person said ‘I can’t sleep either, I’m working’.”

Another added: “I was sent to the access and assessment team, I was sent to reception for a number for a crisis line but it wasn’t operating.”

Our WeMind campaign was launched last week in response to the news the helpline run by the Norwich and Central Norfolk branch of Mind was to have its funding stopped at the end of next month. This is despite the fact it takes 800 calls a month and has been proved to save lives.

The line costs just £120,000 a year to run, but neither of Norfolk’s four Clinical Commissioning Groups (CCGs) or the Norfolk and Suffolk Foundation Trust (NSFT) are prepared to stump up the cash.

However, today Mid Norfolk MP and health minister George Freeman described the service as “vital” and said the government expected the CCGs to give it their support.

He said: “For too long mental health has been the Cinderella of healthcare: under discussed and underfunded.

“That’s why the prime minister has committed us to parity of care between physical and mental health and announced the extra £400m for crisis teams.

“Local service design is rightly a matter for the local NHS: but this helpline is obviously a vital service which the government expects the CCGs to support. I have raised this with the Mental Health Minister and will be raising with the local NHS.”

News of the threat to the service broke last Monday, on the same day David Cameron pledged an extra £1bn for services.

He said at the time: “The task force has set out how we can work towards putting mental and physical health care on an equal footing and I am committed to making sure that happens.

“This means that if you are struggling with a mental health condition you will get the help and support you need.”

But Heather Edmondson, from Litcham, who uses the helpline, said Mr Cameron’s words meant nothing unless they were put into practice locally.

She said: “If Mr Cameron cares that much he should put his money where his mouth is and make sure this service is not scrapped, otherwise it’s just empty words.

“Having the Mind line out of hours and at weekends means everything to me and all the service users. They are well trained, compassionate and have a great deal of knowledge of mental illness.

“There is nothing else in place that comes close to the expertise of the staff at Mind. If this is allowed to happen I fear there will be more unnecessary deaths. I can’t even bear to think of how I will cope without the line.”

The line operates from 2pm to midnight during the week and 24 hours a day at the weekend for those already receiving support from the NSFT. It was initially funded until last summer by four Norfolk CCGs, but when they declined to carry that on the NSFT agreed to foot the bill for another six months.

So far more than 1,500 people have signed the change.org petition, which can be accessed via our website.

A Department of Health spokesman said: “Mental health is a priority for the government.

“Our plan includes making sure 24-hour support, such as helplines, are available in every part of the country. Whilst it is right that local doctors make decisions about the services needed in their communities, we will work with CCGs in Norfolk and across the country to make sure this plan for 24/7 crisis care is delivered.”

•Sign the petition to save the helpline here

Have you used the service and want to back our campaign? Email David Powles at david.powles@archant.co.uk

Opinion from Investigations Unit editor David Powles

It feels as though this should be the simplest of problems to solve.

A charity service, proved to save lives and proved to be required, needs £120,000 a year so it can carry on its work.

At the same time our prime minister proclaims a turning point for mental health provision, declaring that absolutely everyone will get the support they need.

So why, then, are we in this situation where the helpline will stop at the end of next month?

It seems no one wants to pick up the ball – or the bill. The saddest element of this has been the sense that it’s more an argument about which public organisation continues to pay for it, rather than what is right for patients.

Perhaps those behind this decision should speak to the many people who have phoned or emailed our newsroom in the past few days to speak of their complete and utter devastation over the loss of the service.

Most of them say it saved their lives, all of them say that what was offered before (and will presumably be offered after) is not fit for purpose. Throughout the last few months of our Mental Health Watch campaign, numerous sufferers have told how they often feel ignored and uncared for.

Is it any wonder when you consider this sorry saga?

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8 comments

  • I spoke to a police officer who I cant name, he said he was sick of ,HELLesdon crisis team piling people on to the police, I said how many, he said more than I care to mention, he then said his budget this year will be allocated to the community, and not used too run around after mentally ill people, oh so where not part of the community now then, and then said we are a bane too the police, I never asked to be a bane, I just got ill, 6 mental health problems I never asked for, this has upset me a lot in my state of mind, now get ready for the fallout, then watch your budget disappear,

    Report this comment

    morello

    Tuesday, February 23, 2016

  • If this line closes, and yes I have said before I ring this line everyday, with no one to offload your crisis onto they better start getting the police, paramedics , ambulances, helicopters all on standby because there going to be needed too deal with all the desperate suicidal people there about to get, and that will run into thousands, SAVE THIS LINE ITS A LIFESAVER. far cheaper than what there going to get.

    Report this comment

    morello

    Tuesday, February 23, 2016

  • Dear "el84", your sentence "...tell those campaigning to save this support line to not stigmatise people by suggesting they need support..." is extraordinary. The people leading the campaign to keep the Help Line open use the Help Line. The people who make the 800 calls to the Help Line each month support it staying open. The person who set up the petition uses the Help Line herself. I know that when I next go into crisis I will use it as CHRT at NSFT is so poor. I support the Help Line staying open. None of us would call it if we didn't need the support it offers. How exactly are we stigmatising ourselves by saying we need this support? Would you rather some of us just committed suicide instead when there is nowhere else to turn to? Please explain?

    Report this comment

    JonastheLith

    Monday, February 22, 2016

  • Dear Christine Robinson, you are absolutely correct about the shoddy service and about how it has been the case for years and years, not just under this Government. My own experiences of rubbish crisis care started when I first moved to Norfolk 13 years ago, and there have been numerous occasions since where I have been effectively been abandoned as so many who need this Help Line feel they have too. It has been happening under many different Governments. Whilst you are also right in highlighting the deafening silence coming from the “Campaign to save mental health services in Norfolk & Suffolk” with their lack of support for the Help Line (I feel this is something which the EDP should question) I will praise Clive Lewis. He is supporting the Help Line, having signed the petition and has challenged Chloe Smith to sign it too. However, why is there silence from that Campaign? The people at the fore of that Campaign are ideologically driven; if it’s not run by the NHS they don’t like it and won’t support it. Partnership working they hate. One only needs to look at an article in the EDP from last week where that Campaign’s anonymous spokesperson (why anonymous?) said it was an example of ““This is yet another case of the health commissioners at the CCGs refusing to fund mental health services properly. The mental health crisis shows that NSFT cannot provide essential services without sufficient money. The CCGs continue to divert resources away from mental health.” Not one word about the Help Line being important, nay vital, or about their supporting of the Help Line. Why? If it’s not within the NHS they don’t like it, even it saves lives. Oh, and one of the people who is at the fore of that Campaign has a deep seated hatred of Mind for some reasons, or anything good they do he will not support. They go on and on about mortality rates at NSFT but will not support something which keeps people alive. The hypocrisy is there to be seen. Perhaps they would like to answer. Do you want to support a Help Line which keeps people alive, and thereby do something positive, or do you just want to keep complaining, and thereby be constantly negative? Take care, Jonas Lukosevicius

    Report this comment

    JonastheLith

    Monday, February 22, 2016

  • Maybe as NSFT serves Mid Norfolk MP and health minister George Freeman's constituents, he should instead be looking at how the trust is managed & how his own party has under funded it. Both of which are abysmal. Last September the EDP showed that George Freeman's expenses alone had risen by 26% over the previous 3 years. Maybe if the NSFT's funding was linked to his experiences we would have a safer & more usable local mental health trust. Especially if he asked for failing management to do the honourable thing & pass on control to people more competent too. But thinking about it Dippy Dave says it's all down to stigma & this telephone helpline will not help remove stigma. So maybe George Freeman just needs to get his political loyalties right & just tell those campaigning to save this support line to not stigmatise people by suggesting they need support.

    Report this comment

    el84

    Monday, February 22, 2016

  • For over 20 years I've always been told by the NSFT that you can only call the crisis team after 5pm, just goes to show what shoddy service you get from that team. I see the wonderful Campaign to defend mental health services in Norfolk and Suffolk have failed to say anything about the EDP campaign, the petition to save the support line (they refused to share it last time too) or anything else, shows how much these NSFT workers and Clive Lewis house mate cares for mental health service users and services that actually benefit service users. The compassion within the NSFT is non-existent.

    Report this comment

    Christine Robinson

    Monday, February 22, 2016

  • Hang on here!!.... whether this is a great campaign which deserves backing is not the issue here! The previous Health Minister, Andrew Lansley, spent hundreds of millions of pounds, re-designing the healthcare system to pass control back to LOCAL clinical organisations......and when they don't do what MP.s want (because of central Government funding cuts!) the MP.s 'expect' them to support the particular service under the spotlight..... Why waste all that money, if the Government and MP.s just 'expect' their wants to be met all the time....we still have a 'dictated from Whitehall' system! Amazing stuff!!

    Report this comment

    walkerman1009

    Monday, February 22, 2016

  • What a hypocrite.

    Report this comment

    arfur

    Monday, February 22, 2016

The views expressed in the above comments do not necessarily reflect the views of this site

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