April 19 2014 Latest news:
Saturday, December 7, 2013
A mother whose son has been battling a rare duo of cancers since he was 10 years old says she knows he will not make it to Christmas.
Deryn Blackwell, 14, has been battling Langerhans cell sarcoma and leukaemia.
Thought to be the only person to have both conditions at the same time, Deryn has been in hospital in Bristol since February after he underwent a bone-marrow transplant which doctors hoped would treat the two conditions.
Before that he was being treated in Addenbrooke’s in Cambridge.
After a long wait, the Wayland Academy pupil was told the donor’s marrow had failed to graft and his last chance would be to have his own bone marrow stem cells put back in.
But last week doctors told the family that Deryn’s last bag of cells was unlikely to graft and his mum, Callie, said Deryn knows he won’t live much longer.
“He is tired but in good spirits,” she said. “He knows exactly what is going on and isn’t scared at all. He has known for some time that he was going to die and he has made peace with that.”
Deryn celebrated his 14th birthday on Sunday with special messages from celebrities and a present from the EDP.
But the family – Callie, dad Simon and younger brother Dylan – have this week decided to move in to a hospice in Bristol to start end-of-life care.
Deryn has said he doesn’t want to return to Watton because he doesn’t want to die there.
“The hospice is a wonderful place and we will be very well looked after there,” said Callie.
“We have been so lucky and so blessed to have known Deryn for the last 14 years and we will be eternally grateful to him for taking us on a rollercoaster of a ride.
“It hasn’t been a bullet train but more of a slow locomotive so we have had a lot of time to come to terms with what is now happening to our family.
“Not many people get the chance to plan everything, to make sure nothing is left unsaid, to hold, to cherish and to really say goodbye to their child.”
If you can help the family or want to follow their daily progress visit www.doeverything.org.uk or follow them on Twitter at www.twitter.com/_DoEveRYthiNg