October 25 2014 Latest news:
Thursday, February 28, 2013
Today a 13-year-old boy from Watton woke up knowing it was the last full day before potential life-saving operation.
Linda Robson @LindaRobson58: lots of love to you and family
Queen Dalek @QueenDalek: He’s definitely a super hero in my book!
Irish Pixie in Wales @DelThePixie: Wishing you all the best Deryn! xxx
Helen Crane @helenscrane: Wishing you all the best for Friday Deryn, you are very brave xx
Michaela @bettychocs: Good luck x wishing you well xx
Galton Blackiston @ChefGalton: What a brave lad #arealstar
Vivienne Cartner @viviennecartner: Thinking of you Deryn. I’m visiting my family in USA at the moment. Watching your updates. Wishing you the best. Xx
Martin George @geomr: Hi Deryn –we’re all thinking of you in the EDP’s #Derehamoffice – we love your bravery and sense of fun.
Tina beck @bubbles0000: Good luck Deryn, my thoughts r with u xxx
Chris Carey @ccarey71: Special message to young Deryn @EDP24 Keep your head up, & no matter how hard it gets, think of all the fun once you’re out the other end!
Norfolk Lieutenancy @lord_lieutenant: Good luck Deryn
Vicky reeve @vicky_reeve: Good luck Deryn we are all thinking of you here, now on Friday and in the future. You are a true inspiration buddy love + hugs the Reeves
Rose carter @rosiepopscarter: Thinking of u in Friday deryn hope it goes well xxx
Chris Burns @WeeChrissieB: All the best for Friday, Deryn x
Deryn Blackwell has one of the rarest cancers in the world, and for the last two weeks, the Wayland Academy pupil has as been having intensive radiotherapy treatment at the Bristol Royal Hospital for Children to prepare his body for the bone marrow transplant tomorrow afternoon.
And the EDP has followed Deryn and his family’s journey from their home in Watton, to the treatment in the south-west.
He was diagnosed with leukaemia when he was 10, and just two years into treatment was told he had relapsed and developed Langerhans cell sarcoma – one of only six cases in the world.
Thought to be the only person to have both cancers at the same time, Deryn has had pre-operation treatments of body radiotherapy and targeted radiotherapy to his throat, which is where the tumours were found.
Tomorrow’s bone marrow transplant will take around two hours, and then Deryn must spend between three and seven months in total isolation because of his low immunity.
The family don’t know much about Deryn’s bone marrow donor, except that he is a young man from Germany described as a 9/10 match, and whose bone marrow will be extracted, bagged, refrigerated and flown to England today – 24 hours before the operation.
Support on Twitter, on the EDP website, and directly to the Blackwell family has been “fantastic” according to Deryn’s parents, Simon and Callie.
His dad said: “He looks at all the messages and thinks he’s just a boy from Watton and he’s being tweeted so many times, and has hundreds of followers.”
His mum said the radiotherapy treatment Deryn was receiving, which blasts him with as much radiotherapy as surgeons think his body can take, is making him more and more tired, but said his spirits and morale were as high as ever.
She said: “We have had so many messages from people who we don’t even know about Deryn, and his influence on them
“The support has been amazing, and it’s what is keeping him going.
“He’s touching hundreds of people, and he has no idea.”
His dad said yesterday Deryn went to the cinema with his girlfriend and the rest of the family.
He said: “He knows what’s coming, and he knows exactly what’s going to happen.
“He just wants to get on with it now.”
You can tweet Deryn using @_DoEveRYthiNg or visit www.doeverything.org.uk