The Norfolk & Suffolk Dementia Alliance launch at Manorcourt Centre in Griston - From left, Barbara Pointon MBE, with Tracy Wharvell (Safe & Settled), Willie Cruickshank (Norfolk & Suffolk Dementia Alliance), Philippa Shreeve (equip 4 change), Claire Gilbert (Norfolk & Suffolk Dementia Alliance), Andy Bantock (Manorcourt MD) and Dr Jan Sheldon (Royal Ass of Deaf People). Picture: Matthew Usher.

Concern over dementia sufferer care - tell us your experiences

Tuesday, February 26, 2013
10.57 AM

Fewer than half of dementia sufferers living in care homes enjoy a good quality of life, a charity has warned as it revealed that record numbers of people in care homes have the condition.

An Alzheimer’s Society report states that 80pc of people in residential care homes have either dementia or severe memory problems - a rise from previous estimates of 62pc.

But the charity said that while excellent care exists, less than 50pc of the 322,000 sufferers in care homes across the UK have a good quality of life.

It warned that society has such low expectations of care homes that people are “settling for average”.

A spokesman said that 41pc of more than 1,000 relatives and carers surveyed by the charity believe their loved ones enjoyed good quality of life, but 28pc said it was poor.

And a separate poll of 2,000 UK adults found that two thirds do not feel the care sector is doing enough to tackle abuse in care homes, and many admitted they would be “scared” about moving into a care home in later life.

The charity called on ministers and the care sector to work together to strengthen existing minimum standards to boost quality of life for sufferers.

They should also improve public understanding about quality of care sufferers can be offered.

Jeremy Hughes, chief executive of the Alzheimer’s Society, said: “When you walk into an excellent care home it’s full of warmth, activities and interaction. But between these best examples and the worst, which often dominate headlines, there is a forgotten scandal of people with dementia who are failed and left living a life that can only be described as ‘OK’.

“Society has such low expectations of care homes that people are settling for average. Throughout our lives we demand the best for ourselves and our children. Why do we expect less for our parents? We need Government and care homes to work together to lift up expectations so people know they have the right to demand the best.”

Health Secretary Jeremy Hunt said: “No one should feel that they or their loved ones have to settle for poor quality care.

“Whilst many providers are delivering good quality care, this research clearly shows how more needs to be done to improve care across the board. There are no excuses for failing to keep people safe from abuse or not treating them with kindness, dignity and respect.

“This research shows the high prevalence in dementia is amongst people in residential care; it is essential that they are getting care that is right for them.”

Last week, Manorcourt Care day centre in Griston hosted the launch of the Dementia Pledge for Norfolk, Suffolk and Kent, which encourages those caring for people with dementia, either at home or in day centres, to sign up and commit to providing high standards of care.

A central part of the pledge, which aims to include more than 500 care providers, is to put the individual with dementia at the centre of care, as well as gaining a strong understanding of the condition.

Supported by the Department of Health, the pledge is being led by the Norfolk and Suffolk Dementia Alliance and is based on four key principles.

These are knowing the person living with the condition, promoting quality care and life, the idea that everybody has a leadership role, and having value-focused care.

Have you had experience of dementia care in a care home? Leave your comment below or email