September 3 2014 Latest news:
Liam Peake from North Creake, who was born with an open heart valve, has cerebral palsy and a rare hearing disoarder. With him is his dad Damien is doing a skydive to raise money for a hydrotherapy pool, and mum Amanda Mills. Picture; Matthew Usher.
Thursday, September 20, 2012
A father will jump from an aeroplane next week in a bid to give his son a chance of one day being able to walk for the first time.
Young Liam Peake frequently displays a beaming smile which belies his difficult start to life.
The four-year-old from North Creake weighed just 2lbs 10z when he was born 13 weeks premature.
Sadly his twin sister Tia did not survive.
Liam was born with an open heart valve, has quadriplegic cerebral palsy, which affects all of his limbs, was born with a rare hearing disorder and can not speak.
He is one of the first children in Britain to have been fitted with a pioneering new £100,000 hearing aid device.
It was fitted at Great Ormond Street Hospital in London in July.
The hearing aid is magnetically attached to his head and is controlled by a processor strap on his arm. It is hoped this will help him learn to speak.
His mother Amanda Mills said: “Despite his problems Liam is always smiling and laughing his head off. He has just had his first week at Woodfields Specialist School in Sheringham and they all love him there.
“He does not hear sounds the way we do. He has to learn what the sounds he hears mean to him.
“He has improved so much and he usually finds a way of communicating what he wants to say. He can’t walk or crawl so he has to roll everywhere. He is so determined.
“This is the only way Liam knows life to be and he is a very happy little boy.
“It is not impossible for someone with Liam’s conditions to one day lead a partially independent life and this is what we are aiming for. A major goal is for him to eventually walk with a stick.”
To aid him in this Liam’s family and friends are trying to raise £10,000 to get him a hydrotherapy pool at home.
Miss Mills said: “Liam loves the water and it makes a big impact on improving the use of his limbs.”
Liam’s father Damien Peake, 35, is to take part in a sponsored skydive, dressed as Batman, at Sibson airfield, Peterborough next Friday with friends Andy Dunning, 35, from Crewe, who will dress as Superman and Helen Daniels and Guendolen Koryniaka.
Miss Mills said: “Liam will have his illnesses and disabilities for the rest of his life. There is no pill or medication to get rid of them.
“He has a life sentence of struggle but is just as deserving of opportunities in life as anyone.
“We will always be fund-raising to do what we can to give Liam the best life he can possibly have.”
To sponsor the skydive, call Miss Mills on 01328 730559, 07531 859397 or e-mail firstname.lastname@example.org