December 9 2013 Latest news:
Thursday, September 5, 2013
The siblings of an “inspirational” three-year-old who has cerebral palsy have organised a tombola and cake sale so she can have a custom-made tricycle.
Felicity Wright, three, from Adams Lane, Corpusty, who was born five weeks prematurely, was diagnosed with spastic diplegia cerebral palsy in July last year after she had trouble crawling.
Because of the condition, caused by brain damage, she cannot walk long distances unaided and has to use a walking frame because her leg muscles are continuously contracting which make them stiff.
The fundraiser outside Corpusty Stores on Norwich Road will take place this Saturday and all proceeds will go towards a £700 tricycle which will improve Felicity’s leg movement and allow her to play with her two older brothers and sister.
Her mother, Sarah, 31, part-time shop assistant at Corpusty Stores, said: “It is a brilliant idea and I am very proud of my children.”
A physiotherapist first suggested the bike, which has pedals underneath rather than at the front, parent handles and foot supports.
Felicity’s brother Josh, nine, from Corpusty Primary School, came up with the idea to organise a tombola and all three are “very excited”.
The event will run between 2-4pm and Josh will run the tombola, his brother Ben, seven, will run a how many sweets in the jar competition and sister Ellie, five, will collect the donations.
Josh said: “I wanted to raise money for the tricycle so she could get on a bike and play with us. I am looking forward to the tombola.”
Mrs Wright said: “The other children are fantastic with Felicity. They help her along, hold her hand and play with her.”
As well as struggling on her feet she does have some difficulty in her hands and lacks some general motor skills.
On top of the medication to help her sleep at night, Felicity has to wear foot splints, has physiotherapy once a month, speech therapy, occupational therapy and hospital visits.
She should be able to walk more independently with a stick between four and six but will probably have to wear splints until she is 16.
Felicity was born on April 11, 2010, weighing 5lb 4oz in the car park of the Parson Woodforde pub at Weston Longville, near Dereham, and was delivered by father and full-time carer Stephen, 38.
He nearly had to perform mouth-to-mouth resuscitation but Felicity started breathing on her own and spent a week at the Norfolk and Norwich University Hospital.
Mrs Wright said: “When we were told the diagnosis it was awful. Our whole world turned upside down. We threw ourselves into doing the best for her but it was really tough. Hopefully she will be able to walk more independently later on but she will always have her little wobble. Her speech is coming on.
“She is so determined to do everything by herself. She has got a very contagious giggle and is such an inspiration.”
Felicity can walk a few steps inside by herself and can climb up stairs with supervision but cannot get downstairs or jump. She has to use her frame outside and on uneven surfaces.
“The physiotherapist said it was like walking on cobbles in heels. She will never be able to do things like cross country,” Mrs Wright added.
Adaptations will have to be made in Felicity’s home but the condition will not get worse so she will not need any operations.
Anyone can take part in the tombola, where there will be other stalls including name the teddy bear, and donations can be given to Peter and Val Johnson who own Corpusty Stores.